February 4, 2015
It’s been ages since I’ve updated, I know, but we’re still moving forward on Cyborg! We have a few events coming up that I cannot wait to write about but can’t quite yet, things are still in processing and planning.
Don’t fear, we haven’t been buried under too much snow or production to keep us from plowing ahead. (Yes, that was an unintentional pun… I’m not sorry about it.)
I promise my next post will be slightly more coherent.
For now I’ll leave you with:
My cyborg Halloween costume, a costume I’d been thinking about creating for ages:
and some particularly pertinent street art that’s been popping up around Chicago. Cheer up lil guy, winter will be over soon enough.
February 16, 2012
We’re just mid way through Heart Month!
Every foundation and organization is doing what they can and many make it easy as ever to get involved.
Have you been spreading awareness for heart conditions?
December 30, 2011
More stills from our last shoot! Happy New Year everybody!
December 17, 2011
December 16, 2011
Our trip was definitely interesting. Being that this is a major climactic point of the film I can’t divulge too much in the way of information I can at least tell you that we got some phenomenal footage. The people at the clinic were fantastic to work with and we had full access to film all of my diagnostic procedures. A big big Thank You needs to go out to Traci, the PR rep who’s been working with us since this past summer.
Stills coming, more details later, working on sorting and tagging footage now.
December 16, 2011
a mix of photos I took on my phone and screen captures.
December 7, 2011
We got the Mayo Clinic itinerary this week. We fly out there Monday (little leeway in case there’s any snow storms to delay us) and everything starts Tuesday. Here’s a quick run down of what’s in store.
Tuesday’s schedule (starting at 8am):
Signal Averaged ECG
CT Scan of my Heart
trip to the Pacemaker Clinic to meet with a Nurse Consult to turn off my ICD for the next test,
Exercise Treadmill Test (Stress Test)
Wednesday’s schedule (also starting at 8am):
-meeting with Geneticist, Dr. Kirmani (looking into the possibilities of Ehlers-Danlos Syndrome being linked to our heart problems)
-meeting with Dr. Ackerman
As a director I’m very excited to get this footage. It’s going to be really amazing and I’ll get to really dive into the emotional aspects of what going through diagnostics can be like for a patient.
on the other hand…
I’m the patient. I have to go through it all over again and the some in two days… it’s alot to process and it’s bringing up things I thought I was over… but I guess I wasn’t quite done with all of that yet. I’m nervous but I’ll be alright.
November 30, 2011
Hard at work starting the process of organizing all of the footage and prepping it for the editing room! Just wanted to give you an idea of what we’re up to in between shoots. Still hard at work plotting out how we’re going to enter into full blown post production mode.
originally posted at 2am –> yes, I am a nightowl
November 27, 2011
-ICD check up with Dr. Ovadia
-scheduling filming for the rest of December
The schedule will be dependent upon what happens at the checkup. My sister, Allison, is due for a new ICD. At the last appointment her device was slowly approaching ERI (elective replacement indicator) and we’ll find out if it’s there or not.
The uncertainty’s mildly annoying but at least it falls when she’s off work (even if it will be during the holiday).
for more info on the nuances and functions of an ICD, check out THIS ARTICLE. Little intense on the details, and yes, focuses on the fact that its still the misconception that only elderly patients have them, but it’s very informative on the device’s functions and makeup.