post Mayo Clinic

December 16, 2011

Our trip was definitely interesting. Being that this is a major climactic point of the film I can’t divulge too much in the way of information I can at least tell you that we got some phenomenal footage. The people at the clinic were fantastic to work with and we had full access to film all of my diagnostic procedures. A big big Thank You needs to go out to Traci, the PR rep who’s been working with us since this past summer.

Stills coming, more details later, working on sorting and tagging footage now.



Mayo Clinic on Monday

December 7, 2011

We got the Mayo Clinic itinerary this week. We fly out there Monday (little leeway in case there’s any snow storms to delay us) and everything starts Tuesday. Here’s a quick run down of what’s in store.
Tuesday’s schedule (starting at 8am):
Chest X-ray
Signal Averaged ECG
CT Scan of my Heart
Electrocardiogram (EKG)
trip to the Pacemaker Clinic to meet with a Nurse Consult to turn off my ICD for the next test,
Exercise Treadmill Test (Stress Test)

Wednesday’s schedule (also starting at 8am):
Holter Monitor
-meeting with Geneticist, Dr. Kirmani (looking into the possibilities of Ehlers-Danlos Syndrome being linked to our heart problems)
-meeting with Dr. Ackerman

As a director I’m very excited to get this footage. It’s going to be really amazing and I’ll get to really dive into the emotional aspects of what going through diagnostics can be like for a patient.

on the other hand…

I’m the patient. I have to go through it all over again and the some in two days… it’s alot to process and it’s bringing up things I thought I was over… but I guess I wasn’t quite done with all of that yet. I’m nervous but I’ll be alright.